Comments on: Medicare Pays For Your Transplant But Not Anti-Rejection Drugs? http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/ NEWS & VIEWS ON ORGAN DONATION & TRANSPLANTATION Thu, 24 Dec 2009 04:38:40 +0000 http://wordpress.com/ hourly 1 By: Lori Geitner http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-695 Lori Geitner Tue, 22 Sep 2009 03:48:30 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-695 I am 45 yrs old. I had a kidney transplant about 16years ago. I am on medicare and ssi. I am so upset and scard I don't know what is going to happen. My husband has been working 2 jobs for the past 6 years so we have health insurence. because of the transplant NO company will take me. I know something bad is going to happen sooner then later. His father had a bad stroke because of working to much and high B/P. (my husband works from 4:30am til7:30-8:00 or later then eats and goes to bed 61/2 days a week. The point what I am trying to say is we have 2 choices. 1) He can quite his hell hole job then we have no way to pay for my meds and my labs doctors. we would loose EVERYTHING. our home then my family will loose me. all because I had had a kidney thansplant and needed my meds. OR 2) My husband could keep his 2nd job and end up in a nuresing home because of a stroks or even die. I would not have any insurence so I would get my meds ect and I would die. All because i had had a kidney transplant and needed my meds. Is there anyone out there with problems some what or the same as me I would like to talk to you. my e-mail is lilbrewerpug@yahoo.com. or if you would like to write to me thats GREAT also my address is: Lori Geitner 8422 HWY57 Baileys Harbor WI 54202. I am going to write to congressmen and senators. To anyone and everyone. WE NEED HELP!!!!! I would love to hear from everyone Lets all MAKE A DIFFERENCE. THANK YOU for your time. I am 45 yrs old. I had a kidney transplant about 16years ago. I am on medicare and ssi. I am so upset and scard I don’t know what is going to happen. My husband has been working 2 jobs for the past 6 years so we have health insurence. because of the transplant NO company will take me. I know something bad is going to happen sooner then later. His father had a bad stroke because of working to much and high B/P. (my husband works from 4:30am til7:30-8:00 or later then eats and goes to bed 61/2 days a week. The point what I am trying to say is we have 2 choices. 1) He can quite his hell hole job then we have no way to pay for my meds and my labs doctors. we would loose EVERYTHING. our home then my family will loose me. all because I had had a kidney thansplant and needed my meds. OR 2) My husband could keep his 2nd job and end up in a nuresing home because of a stroks or even die. I would not have any insurence so I would get my meds ect and I would die. All because i had had a kidney transplant and needed my meds. Is there anyone out there with problems some what or the same as me I would like to talk to you. my e-mail is lilbrewerpug@yahoo.com. or if you would like to write to me thats GREAT also my address is: Lori Geitner 8422 HWY57 Baileys Harbor WI 54202. I am going to write to congressmen and senators. To anyone and everyone. WE NEED HELP!!!!! I would love to hear from everyone Lets all MAKE A DIFFERENCE. THANK YOU for your time.

]]> By: Patricia Goodwin http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-684 Patricia Goodwin Thu, 03 Sep 2009 13:14:25 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-684 Is it true that meicare will not pay for any transplant related drugs if the person had the transplant while on the medicare 24 month waiting list. My daughter may have to have a transplant wile waiting for medicare to kick in. She is , currently, receiving Charity care. Is it true that meicare will not pay for any transplant related drugs if the person had the transplant while on the medicare 24 month waiting list. My daughter may have to have a transplant wile waiting for medicare to kick in. She is , currently, receiving Charity care.

]]> By: Angela Conahey http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-656 Angela Conahey Fri, 24 Jul 2009 01:30:02 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-656 My adult son received a transplant in Jan 08 we are now worried he has no insurance and is on Medicare and SSI.The anti rejection meds and his dr's visits and lab work that medicare pays for is Preventive and after the 36 months which will be Jan 2011.We don't know how he going to pay for his meds dr's appt. and lab work you have to have to check his rejection levels. I haven't figured out why they will pay for dialysis which costs alot more than transplant and they will only cover them for 36months.When the Donor who donated the Kidney for transplantation donation would be in vain because if the transplant is rejected because of the fact that the patient didn't have the help to pay for the meds and labs and dr's visits and preventative treatment that they should have and would have if the government would cover all transplant patient for there whole life. You would have less patient rejecting a kidney or other organ and patient wouldn't have to have to either go back on dialysis or try for a second transplant if they would have had the medical help to begin with it would make it easier for people have a chance for a transplant and the waiting list would go down. That my opinion. I have work my Senator and House of Representatives about getting the Bill passed. I have my family and friends writing to.I would like to find a way to tell are story to the President he need to know what is wrong with the transplant world.I will keep writing letters. I wish everyone lots of luck in there journey in the transplant world as a Mother and Caregiver i am learning as i go.. Best of luck. Concern Mother My adult son received a transplant in Jan 08 we are now worried he has no insurance and is on Medicare and SSI.The anti rejection meds and his dr’s visits and lab work that medicare pays for is Preventive and after the 36 months which will be Jan 2011.We don’t know how he going to pay for his meds dr’s appt. and lab work you have to have to check his rejection levels. I haven’t figured out why they will pay for dialysis which costs alot more than transplant and they will only cover them for 36months.When the Donor who donated the Kidney for transplantation donation would be in vain because if the transplant is rejected because of the fact that the patient didn’t have the help to pay for the meds and labs and dr’s visits and preventative treatment that they should have and would have if the government would cover all transplant patient for there whole life.
You would have less patient rejecting a kidney or other organ and patient wouldn’t have to have to either go back on dialysis or try for a second transplant if they would have had the medical help to begin with it would make it easier for people have a chance for a transplant and the waiting list would go down. That my opinion. I have work my Senator and House of Representatives about getting the Bill passed. I
have my family and friends writing to.I would like to find a way to tell are story to the President he need to know what is wrong with the transplant world.I will keep writing letters. I wish everyone lots of luck in there journey in the transplant world as a Mother and Caregiver i am learning as i go..
Best of luck.
Concern Mother

]]> By: Debbie http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-571 Debbie Thu, 18 Jun 2009 16:12:18 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-571 My son is on dialysis right now and I am worried about how he will pay for his medications after transplant. This is a very scary thing for people facing transplant. I have talked with others who are on dialysis and they have made the choice NOT to have a transplant because of the cost of the medications you need after, for a life time can not afford the medications. I will be writing a letter also. Thank you, Debbie My son is on dialysis right now and I am worried about how he will pay for his medications after transplant. This is a very scary thing for people facing transplant. I have talked with others who are on dialysis and they have made the choice NOT to have a transplant because of the cost of the medications you need after, for a life time can not afford the medications. I will be writing a letter also.

Thank you,
Debbie

]]> By: Kathy McLaurin http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-448 Kathy McLaurin Fri, 24 Apr 2009 00:32:45 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-448 My daughter received a kidney 20 months ago. We have already started trying to think of a way to pay for her anti rejection drugs when she reaches her 36 months. Yes, she has a supplemental insurance but it will not pay what the medicare coverage pays. I am writing my congressmen & senators & the president this week with my concerns. Thanks for the article! Kathy McLaurin Petal, MS My daughter received a kidney 20 months ago. We have already started trying to think of a way to pay for her anti rejection drugs when she reaches her 36 months. Yes, she has a supplemental insurance but it will not pay what the medicare coverage pays.
I am writing my congressmen & senators & the president this week with my concerns. Thanks for the article!
Kathy McLaurin
Petal, MS

]]> By: David Granovsky http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-284 David Granovsky Fri, 27 Feb 2009 05:15:56 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-284 Very quietly, buried in a 3 page article on platelet rich plasma and horse and athlete injury treatments was this epic and monumental bombshell! Do NOT underestimate how significant this is. Up till this point, the US medical establishment thought that adult stem cells were unproven, of limited potential and a waste of time and money. Now the big daddy of them all, the NIH, is jumping in with both feet! This is not a secondary back up treatment to improve red blood cell levels after chemo. This is the NIH advocating THE USE OF ADULT STEM CELLS TO TREAT DEBILITATING MEDICAL CONDITIONS! You heard it here first! -DG "The National Institutes for Health seem to think regenerating human muscle and bone using a person's own adult stem cells is nearly ready for prime time. Last week, the NIH announced to its staff that it's creating a bone marrow-stem cell transplant center within the NIH Clinical Research Center." This is the first step of a long road but maybe one day soon, the multitude of Americans suffering with diseases that can be improved with adult stem cells will not have to travel overseas for treatments. We can only hope. -DG http://repairstemcell.wordpress.com/2009/02/26/nih-says-adult-stem-cells-are-ready-for-the-prime-time-yah-baby/ Very quietly, buried in a 3 page article on platelet rich plasma and horse and athlete injury treatments was this epic and monumental bombshell! Do NOT underestimate how significant this is. Up till this point, the US medical establishment thought that adult stem cells were unproven, of limited potential and a waste of time and money. Now the big daddy of them all, the NIH, is jumping in with both feet! This is not a secondary back up treatment to improve red blood cell levels after chemo. This is the NIH advocating THE USE OF ADULT STEM CELLS TO TREAT DEBILITATING MEDICAL CONDITIONS!

You heard it here first! -DG

“The National Institutes for Health seem to think regenerating human muscle and bone using a person’s own adult stem cells is nearly ready for prime time.
Last week, the NIH announced to its staff that it’s creating a bone marrow-stem cell transplant center within the NIH Clinical Research Center.”

This is the first step of a long road but maybe one day soon, the multitude of Americans suffering with diseases that can be improved with adult stem cells will not have to travel overseas for treatments. We can only hope. -DG

http://repairstemcell.wordpress.com/2009/02/26/nih-says-adult-stem-cells-are-ready-for-the-prime-time-yah-baby/

]]> By: What’s Happening? » Blog Archive » Heath Ledger Honored in Hollywood : Movie Review Video News http://bobsnewheart.wordpress.com/2009/02/22/medicare-pays-for-your-transplant-but-not-immunosuppressive-drugs/#comment-276 What’s Happening? » Blog Archive » Heath Ledger Honored in Hollywood : Movie Review Video News Sun, 22 Feb 2009 21:11:56 +0000 http://bobsnewheart.wordpress.com/?p=180#comment-276 [...] Medicare Pays For Your Transplant But Not Immunosuppressive Drugs … [...] [...] Medicare Pays For Your Transplant But Not Immunosuppressive Drugs … [...]

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