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Mom loses Two Sons, Helps Save Lives of Others.


mothers-love

By Bob Aronson

This is a story about a remarkable woman, her family and her incredible spirit. It is a story that has no ending because it is still unfolding. It is a story that is guaranteed to make you

claire-selfie

Claire

experience every possible emotion. It is the story of Claire Connelly of San Diego, California. A divorced mom of three — Sara, Pete and Paul Neves. Even her name has a story. When she was divorced she took her original name Connelly back because so many who held the name had died and she wanted to extend its life. That’s Claire, she is all about life and living.

My first contact with her was by email where she goes by the name “Pete’s mom RIP.” That alone tells you a little about her and about a son who is no longer with us. But that’s only a fraction of the full story, a story that is bound to make you smile, cry and then smile again. It was a difficult story to write because there is so much to tell and so little space in which to do it.

“The Agony and the Ecstasy” was a 1965 film about the great artist Michelangelo. That title came immediately to mind after speaking with Claire for the first time. She has gone through incredible agony and it lives on, but her actions have also allowed her and others some ecstasy, much of which is still to be experienced.

I’ve only had email, text and phone contact with Claire, but it is easy to see that she is a vibrant, fun, upbeat woman who loves life, but has suffered losses few could survive and maintain their sanity. Most importantly, Claire Connelly has given life in more ways than one. She is an absolutely remarkable woman who willingly shares her story so that others may benefit. Prior to our interview Claire warned me, “I’m a crier,” she said. After the interview my tears flowed with hers.

Pete was Claire’s middle child. She speaks of him with intense love and pride. He was a model child, neat, organized and truly gifted. When we talked

claire-and-her-bosys-high-quality

Pete & Claire. Paul in back.

she described the young boy who would select what he wanted to wear to school before he went to bed at night. As he grew up he decided that his life’s goal was to become a U.S. Army Ranger.

The U.S. Army Rangers are a very tough outfit. Few who apply for Ranger

framed-picture-of-pete

Ranger Pete

training make it through the program that’s been called the “toughest combat course in the United States.” Pete made it through with flying colors and got into Special Forces, but a back injury ended his career. Disappointed, but still wanting to stay in the Army Ranger Family and connect with other Rangers he returned home and started a U.S. Army Ranger website where he sold Ranger T-shirts, caps and other items.

When the second Iraq War started Pete signed up as a contract soldier, his Ranger instincts were still alive and he wanted to help, but despite his excellent physical condition he found himself weakening. He could no longer make long marches or sustain extended

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Pete fighting cancer

periods of physical activity. Something was wrong. He returned to the U.S. and was diagnosed with fourth-stage Medullary thyroid cancer. Pete was treated at the M.D. Anderson cancer center, but without success and his condition slowly worsened.  Claire, in tears when she talks about his hospitalization and upbeat attitude said, “The worst thing he could say was, “Mom, I’m not having a good day.” He never complained, he soldiered on. He was in the battle of and for his life, but the odds were just too great and Pete succumbed on October 13, 2008 at the age of 46 leaving a wife and daughter behind. Claire remembers Pete every minute of every day. Thoughout her home she has Pete memorabilia and each year on the anniversary of his death she finds a new way to honor him, like going to the beach and tossing something into the ocean for him.

Needless to say Pete’s passing was a devastating blow for Claire, but she’s a strong woman
and let her memories of Pete sustain her. Claire went on with her life, but never forgetting October 13. As the years passed she mourned, but enjoyed contact with her peteremaining children Paul and Sara. Then on an otherwise happy day, Claire got the phone call no parent ever wants to receive. “Come to Sacramento right away,” said a hospital nurse who explained that Paul had suffered a massive stroke. He was found on the sidewalk by his house unconscious. It was estimated he had been there for three hours or more before he was discovered and now a web of wires and tubing connected him to the technology that kept his heart beating and his lungs working. Claire remembers that phone conversation as though it took place an hour ago, “When I got the call that my other son, Paul, was on life support and could I please come up to Sacramento to sign the necessary papers for his organ donations, I put the phone down and let out screams I didn’t know I had inside of me.”

While he was rushed to the hospital there was nothing that could be done; the time between the stroke and his being found was just too long.  Claire hurried to be near her son, her “Baby” as she called him.

When Claire arrived at the hospital she was told that Paul showed no brain activity. He was what is commonly known as “brain dead.” Shortly after she was approached by the Organ paul-on-life-supportProcurement Organization and told that Paul’s driver’s license indicated he was an organ donor. Claire, also an organ donor, immediately agreed to honor Paul’s wishes. She was informed that he was in such good physical condition that all organs that were transplantable could be donated, but first they had to find recipients. That meant Paul would be kept on life support for several more days. Days in which Claire sat and stared at her immobilized son, tubes and wires still attached still breathing and warm to the touch of a mother’s hand.

Finally she was told that recipients had been found and it was time to take Paul off of life support. There cannot be a more terrifying moment for a parent, than to be called upon to end the life of an offspring. What pained her most is that they never got to say goodbye. “When Pete died,” she said, “it was terribly sad but we had a lot of time to talk and say goodbye. With Paul it was so sudden, “I never got to say goodbye,” she sobbed. But the worst part of the story is that Paul’s passing on October 13, 2013 was exactly five years to the day after Pete who died October 13, 2008.

Claire is still stunned by the fact that her two boys died exactly five years apart and she still grieves. Parents are not supposed to outlive their children, but there is a bright spot in this story and it is the lives saved by the donation of Paul’s heart, liver, lungs and kidneys.

For a while after Paul’s passing Claire waited to see if she would be contacted by recipients of Paul’s organs, but nothing came so Claire being Claire, decided to write to them. Her letters were passed on by the local Organ Procurement Organization (OPO). Here’s what she wrote.

October 16, 2013

“Dear Recipient,

Please know that your recent gift of an organ came from my son who died suddenly, leaving all of Man in dark night, face lit by blank white LCD laptop display lightus bereft, were it not for his generosity in wanting to be an organ donor at the end of his life, which we all hoped would be many years down the road, at least well after mine.  The last thing he wanted was to be hooked up to any machine, but that is exactly what happened.  We feel that because that was necessary to keep his organs going to fulfill his wish of organ donation, he would have approved being monitored by banks of machines, and being poked and prodded endlessly for three days in order for that to happen.

He was a give-you-the-shirt-off-his-back kind of guy who loved the great outdoors, loved to fish, camp and ride his wave runner, and was thrilled at the sight of any wildlife, be it raccoon, elk, mountain lion or bear.  He loved Yellowstone National Park best of all.  He cherished life and we are comforted by the fact that parts of him will live on and our prayer is that you take good care of and appreciate what you have been given – a central piece of him – his ultimate gift.  The fact that he was able to donate so many of his organs speaks to the fact that our family is blessed with good genes and we hope and pray that your new organ will serve you well, with every beat of his heart and every breath that you take, and that you think kindly of him from time to time.  I can assure you that he, as well as you, are in our thoughts and prayers every day.

Perhaps one day we can share our thoughts in person, if you are willing.  Our family is hoping for that possibility and look forward to the day when that can happen.

The mother of the donor.

Again she waited. Months went by and then one day, a letter arrived (edited to protect the identity of the recipient).

Dear Mother of the donor,

Your heartfelt letter was received at a perfect time of my life.  Before I continue any further allow me express my sincere thank you to the mother and family of my heart donor. I would also like to thank the young man who is responsible for my being alive today. 

thaank-youIt is because of you and of course your loving son that I am alive. Please know that each time I feel my heart beat I think of your son. It is amazing to me that your son (my donor) and I have so much in common. I was blessed with receiving a new heart. I will never take that for granted.  Please be assured that I am taking very good care of myself and that I am getting emotionally and physically stronger and stronger as each day passes. I look forward to meeting with you one day and am overwhelmed with the thought of that meeting.

God bless you and I’m looking forward to talking with you soon.”  

The recipient has asked that his identity not be revealed.

Claire is excited as well because the meeting date has been set for December 12, not long from now. While it is not unusual for donor families to go public with their stories, it is also not common, but Claire Connelly is not your average person. I asked her why shedonor-certificateagreed to an interview and to have me publish a blog. Here’s what she said.

“My purpose in telling my story, and I believe I am speaking not only for myself but for other donor families as well, is to convince even one organ recipient to take a moment out of their busy day to send a word of thanks to the donor family.  If I can do that, then this effort would have been worthwhile.

For the organ recipients who feel they don’t want to remind the donor families of their loss, my wish is that they begin thinking of it in a new way.  Most donor families are ALREADY still feeling that loss, and it might give them some comfort to know that their loved ones hearts are still beating, or their eyes are still taking in the wonders of this world, or their lungs are being appreciated with every breath you take.

From this donor mother’s perspective, perhaps they are wondering why the gift of life that their family member provided has not moved the recipient enough to say thank you and to let that donor family know that you appreciate the generosity it took for their loved one to sign that donor card to leave their organs in such a profound way to total strangers.  They are left to wonder if you truly appreciate the generosity it took for that family to agree to a procedure with which they may not depositphotos_27524217-lovely-retired-elderly-couple-havingtotally agree, and to go to the hospital every day to keep a vigil for the brain-dead body of their family member, while potential organ recipients are researched, measured, weighed, matched up, scrutinized and finally, all scheduled to be prepped for the exact same moment.  While it was heart-wrenching to see my son for the last time as he was wheeled out of his room to the O.R. just down the hall for the recovery of his organs, it was so rewarding to hear directly from his heart recipient how much he appreciated the gift and to hear to what lengths he goes to protect it, to take care of it, to monitor it, to faithfully keep his checkup appointments, etc.  I can only say it did this mother’s heart good to KNOW FOR SURE that Paul’s heart beats on, is appreciated, and cared for.

Paul’s heart recipient and I have agreed and are looking forward to meeting in person on December 12 when he can thank me in person and I can feel and hear Paul’s heart beating within his recipient’s chest.  We have already shared photos and he calls me, “Mom.” I don’t want him to think of Paul as “some dead guy”, but as the generous fabulous person he was.  Toward that end, there are things of Paul’s that I want to give to him, and things about Paul that I want to tell him.  Nobody, except another donor family member, could even begin to imagine what this experience will be like.  Will it be emotional?  Certainly.  Would I miss it for the world?  Not a chance.  The willingness of his heart recipient to contact me is what will make this possible.  While it won’t bring Paul back, it will go a LONG LONG WAY to give me the peace of mind in knowing what a difference he has been able to make in this man’s life and that he appreciates it each and every day and that he is taking every measure and precaution with Paul’s heart.  And THAT does this mother’s heart good

While I have not heard from the recipients of Paul’s two lungs, two kidneys, nor liver, I still wonder about them, but that is outweighed by knowing, at least, that his heart is still beating within this kind man’s chest and who cared enough to write a thank you letter.”

Claire Connelly is a unique person who told this story to help others. I know she’d like to hear your thoughts and you can send them to her through my email address bob@baronson.org and I will pass them on.

And one more thing. If you are an organ donor, that’s great. If you aren’t, register at donatelife dot net and get your family and friends to do the same.

Dr. Seuss said it best, “Unless someone like you cares a whole awful lot, nothing is going to get better. It’s not.”

Thank you Claire and most of all, thank you Paul for your gifts of life.

bob 2*Note. Bob Aronson the author of this blog is a 2007 heart transplant recipient. He is the founder of Facebook’s Organ Transplant Initiative a donor/recipient/caregiver/donor family and friends support group of well over 4,000 members.

Check the index on this blog for other posts that may be of interest to you, there are nearly 300 of them on almost as many topics related to transplantation/donation issues.

 

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Does An Organ Transplant also Transplant Donor Memories?


I have researched and published several blogs on  cellular memory and am doing it again because in the five years I have been writing the Bob’s Newheart column it is clearly the most popular topic.   It has had thousands and thousands of hits from all over the world.

Personally I am a cellular memory skeptic  in that I had a heart transplant in 2007 and developed no new habits or tastes.  I am pretty much who I always was.  Having said that I do not discount the experience of others who feel their lives, habits and even personalities have changed and in some cases the changes, they say, are dramatic.   Who am I to say that their experiences are not real?

Because of the popularity of the subject matter I embarked on another search to see if there was any new information since my last blog on the issue a couple of years ago.  I found this piece to be so complete I decided that rather than paraphrase or lift quotes from it I would just post the entire document.  Published originally by the Skeptics Dictionary, it covers just about every aspect of this most interesting phenomenon.  The Skeptic’s Dictionary calls itself “A Collection of strange beliefs, amusing deceptions and dangerous delusions.” and you can find it here http://www.skepdic.com/cellular.html

Cellular Memory

The Skeptic’s Dictionary

“The idea that transplanting organs transfers the coding of life experiences is unimaginable.”  –Dr. John Schroeder,  Stanford Medical Center

Cellular memory is the speculative notion that human body cells contain clues to our personalities, tastes, and histories, independently of either genetic codes or brain cells. The magical thinking of our ancestors may account for the first beliefs in something like cellular memory. Eating the heart of a courageous enemy killed in battle would give one strength. The practice of eating various animal organs associated with different virtues such as longevity or sexual prowess* is one of the more common forms of magical thinking among our earliest ancestors. Even today, some people think that eating brains will make them smarter.

The idea of cellular memory has been used in several films. For example, Les Mains d’Orlac (1920) by Maurice Renard  (1875-1939) is built around a story of a concert pianist who loses his hands in an accident and is given the hands of a murderer in a transplant operation. The pianist then develops an urge to kill. Several variations of Renard’s story have made it into film, including Orlacs Hände, a 1924 silent Austrian film, Mad Love (1935), Les Mains D’Orlac (1960), and Hands of a Stranger (1962). A similar story is told by Pierre Boileau and Thomas Narcejac (authors of Vertigo) in et mon tout est un homme (1965), which was made into the film Body Parts in 1991. A prison psychiatrist loses an arm in an accident and is given the arm of an executed psycho-killer. The arm then develops a mind of its own. In the film Brian’s Song, the 26-year old Brian Piccolo (played by James Caan) is dying of cancer when Gayle Sayers (played by Billy Dee Williams), his friend and Chicago Bears teammate, visits him in the hospital. Piccolo had been given a transfusion and he asks Sayers if he had donated any blood. When Sayers says yes, Piccolo remarks that that explains his craving for chitlins.

In real life, Claire Sylvia, a heart-lung transplant recipient, explained her sudden craving for beer by noting that her donor was an 18-year-old male who died in a motorcycle accident. She’s even written a book about it (A Change of Heart), which was made into a movie for television in 2002 called “Heart of a Stranger,” starring Jane Seymour.

Dr. Larry Dossey doesn’t accept the cellular memory explanation for Claire Sylvia’s sudden craving for beer. He thinks that the most likely explanation “is that the consciousness of the donor had fundamentally united with the consciousness of the recipient enabling the recipient to gain information from the donor.” Perhaps, he mused, organ recipients enter into a realm of consciousness where information about another person can be accessed through the Universal Mind.* Perhaps, but is there a simpler explanation?

James Van Praagh, on the other hand, is quoted by Claire Sylvia as saying: “Donated organs often come from young people who were killed in car or motorcycle accidents, and who died quickly. Because their spirits often feel they haven’t completed their time on earth, they sometimes attach themselves to another person. There may be things that your donor hadn’t completed in the physical world, which his spirit still wanted to experience.”* James claims to get his information from the spirit world. Unfortunately, we have no way of validating his claims.

Paul Pearsall, Ph.D., a psychologist and author of The Pleasure Prescription and The Heart’s Code,  goes much further in his speculations than that certain cravings are passed from donor to recipient in organ transplants. Pearsall claims that “the heart has a coded subtle knowledge connecting us to everything and everyone around us. That aggregate knowledge is our spirit and soul. . . .The heart is a sentient, thinking, feeling, communicating organ.” He claims “donated cells remained energetically and nonlocally connected with their donor.” How he knows this is anybody’s guess.

Sylvia Browne teaches a course for alternative education programs Healing Your Body, Mind & Soul. In one two-hour session Ms. Browne will teach anyone “how to directly access the genetic code within each cell, manipulate that code and reprogram the body to a state of normalcy.” Anyone with a little bit of knowledge of genetics would recognize that these claims are preposterous, yet when the course was offered in Sacramento, it was sold out.

L. Ron Hubbard speculated in Dianetics that cellular memory might explain how engrams work.

Dr. Candace Pert, a professor in the department of physiology and biophysics at Georgetown University, believes “the mind is not just in the brain, but also exists throughout the body.”  Dr. Pert is an expert in peptide pharmacology. “The mind and body communicate with each other through chemicals known as peptides,” she claims. “These peptides are found in the brain as well as in the stomach, muscles and all of our major organs. I believe that memory can be accessed anywhere in the peptide/receptor network. For instance, a memory associated with food may be linked to the pancreas or liver, and such associations can be transplanted from one person to another.”* The evidence for these claims has yet to be produced and Pert’s notions have not found favor with neuroscientists who study the nature of memory. I especially await the evidence for the holographic mind that exists throughout the body. How does she know that it doesn’t extend beyond the body? Perhaps it goes all the way out to Larry Dossey’s Universal Mind. It’s not at all clear what Pert means by ‘mind’. In any case, Dr. Pert doesn’t explain why we don’t seem to be affected by the memories of the animals we eat. Perhaps their peptides get destroyed by cooking.

Attilio D’Alberto has found that he can easily reconcile traditional Chinese medicine (TCM), cellular memory, and quantum physics in one holistic metaphysical hodgepodge. You’ve got your yin organs and your yang organs, your E=mc2, your sympathetic magic (each organ has an associated emotion, spirit, planet, etc.), your quantum level of subatomic particles and frozen energy fields with their different frequencies. “If a heart is transplanted, the memory at the cellular level and at the spiritual level, the Shen, will be moved with the donated organ.” However, it seems clear that he is just guessing.

Gary Schwartz claims that he has 70 cases where he believes transplant recipients have inherited the traits of their donors. He believes this because the “stories are compelling and consistent.”* He also believes he understands the mechanism by which cellular memory works:

When the organ is placed in the recipient, the information and energy stored in the organ is passed on to the recipient. The theory applies to any organ that has cells that are interconnected. They could be kidneys, liver and even muscles.

How he knows this is a mystery. If it is true that donors pass on personality traits and personal tastes, then it might be unwise for people to get organ transplants from other species, such as the baboon. Again, if all cells are carrying information that can be passed on in transplant, why wouldn’t this information be transferred when we eat fruits, vegetables, or any other living thing. Shouldn’t we be releasing into our bloodstream the magic of a living thing’s history with each bite we take? Schwartz calls his belief a “theory,” but it is not a theory in the sense that scientists use the term.* It would be more accurate to call it an untestable speculative model.

An organ transplant is a life-altering experience, literally. In many cases, it might well be compared to the near-death experience since many transplants are done only if death is imminent. It should not be surprising to find that many transplant recipients change significantly. Some of these changes might easily be interpreted as being consistent with the donor’s likes and dislikes or behaviors. Recipients would want to know about their donor and might consciously or unconsciously be influenced by stories about the person who now “lives inside them.”

Collecting stories to validate a hypothesis is a risky business. Stories of transplant recipients that don’t seem to exhibit memories from their donor don’t prove that they aren’t there but those stories are selected out anyway. Stories that do seem to exhibit donor memories don’t prove cellular memory but collecting a bunch of them could lead one to see a pattern that isn’t really there. Collecting such stories may simply prove that the researcher is good at confirming his or her bias. The validation process becomes more complicated when one considers that many organ recipients will give in to magical thinking and “feel” the presence of the deceased donor within them. The recipient’s subjective validation may be driven by a desire to prove the belief or to please the donor’s family, the doctor, or a medical attendant who may encourage the belief. Furthermore, now that the idea of cellular memory is being promoted in books and on television (the Discovery Health Channel, for example), there will be a problem of making sure that stories aren’t contaminated.

Science should be moving us forward, bringing about a better understanding of how phenomena work. Scientists like Gary Schwartz and Paul Pearsall introduce mysticism and magical thinking into the mix, which is very attractive to many New Age healers because it supports their spiritual leanings. However, such thinking does not advance science; it takes it back to an earlier time, a time when the world was dominated by magical powers. It dresses that world in scientific-sounding jargon about energies and quantum physics, but it does little to advance our understanding of anything and it will continue to fail to convince the scientific community at large, which has a higher standard of evidence, of its speculations.

Here is what Jeff Punch, M.D., has to say about cellular memory:

There are several possible logical explanations for why people might assume characteristics of their donors: Side effects of transplant medications may make people feel weird and different from before the transplant. For example, prednisone makes people hungry:

The recipient of an organ transplant develops a love of pastry and finds out the person that donated their organ loved pastry as well. They think there is a connection, but really it is just the prednisone making their body crave sweets.

It could also be pure coincidence:

The patient watches a TV show while recovering from a transplant that shows older adults rollerblading and decides that it looks like fun, but doesn’t make a conscious decision to do anything about it because they are still recovering from the transplant. Months later they are shopping and they see rollerblades and decide to give it a try since it was something they were incapable of doing for heath reasons before the transplant. They like it and get good at it. Later they find out that the donor was a young person that liked to rollerblade. It is easy to understand how the patient and family might believe that the new organ had something to do with Mom’s new-found love of rollerblading. In actuality, the only thing the new organ gave her was the health to try rollerblades. The idea came from a TV show she forgot she ever saw.

A transplant is a profound experience and the human mind is very suggestible. Medically speaking, there is no evidence that these reports are anything more than fantasy.

Even so, the stories are intriguing and may lead to some serious scientific investigation at some time in the future.

Bob Aronson of Bob’s Newheart is a 2007 heart transplant recipient, the founder of Facebook’s nearly 2,500 member Organ Transplant Initiative and the author of most of these donation/transplantation blogs.

You may comment in the space provided or email your thoughts to me at bob@baronson.org. And – please spread the word about the immediate need for more organ donors. There is nothing you can do that is of greater importance. If you convince one person to be an organ and tissue donor you may save or positively affect over 60 lives. Some of those lives may be people you know and love.

Please view our video “Thank You From the Bottom of my Donor’s heart” on http://www.organti.org This video was produced to promote organ donation so it is free and no permission is needed for its use.

If you want to spread the word personally about organ donation, we have another PowerPoint slide show for your use free and without permission. Just go to http://www.organti.org and click on “Life Pass It On” on the left side of the screen and then just follow the directions. This is NOT a stand-alone show; it needs a presenter but is professionally produced and factually sound. If you decide to use the show I will send you a free copy of my e-book, “How to Get a Standing “O” that will help you with presentation skills. Just write to bob@baronson.org and usually you will get a copy the same day.

Also…there is more information on this blog site about other donation/transplantation issues. Additionally we would love to have you join our Facebook group, Organ Transplant Initiative The more members we get the greater our clout with decision makers.

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